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Allergies In Schools: The Hidden Time Bomb

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Allergies In Schools
The Hidden Time Bomb
A Year of Change
and Partnerships
 Rick Walters, “Nathan’s Dad”
 Doug Wordell, RD
11/13/2015
Why I am here?
Parent’s perspectives
Put a face to the issue
Foster Partnership between Parents
and School Staff.
Nathan and other children
11/13/2015
NATHAN’S STORY AND HIS
MEMORY
 NATHAN OUR
ONLY SON
 NATHAN FIRST
GRANDCHILD ON
BOTH SIDES OF
THE FAMILY
 NATHAN ONLY
GRANDSON TO
CARRY ON THE
FAMILY NAME
11/13/2015
NATHAN
 LOST TO SEVERE FOOD ALLERGY
MAY 18TH 2001
11/13/2015
Why?
A question I still ask daily.
A question that caused a mission.
A question that I hope people will
continue to ask.
A question that brought change.
11/13/2015
Mediated Settlement with
District 81
The start of partnership
 Laid out groundwork for a task force to
revise practices to ensure another
accident didn’t happen.
 Secured a donation to F.A.A.N. of $25,000
11/13/2015
FOOD SHOULDN’T KILL
BUT IT DOES
 Approximately 50 million Americans
suffer from some form of allergic
disease. It can develop at any age, and
heredity plays a key role in who will
develop it
11/13/2015
FOOD ALLERGIES
Scientists estimate that between 6 and 7 million Americans suffer from true
food allergies. At the present time, there is no cure for food allergy.
Avoidance is the only way to prevent an allergic reaction.
Although an individual could be allergic to any food, such as fruits,
vegetables, and meats, they are not as common as the following eight foods
which account for 90 percent of all food-allergic reactions:
Milk
Egg
Peanut
Tree nut (walnut, cashew, etc.)
Fish
Shellfish
Soy
Wheat
11/13/2015
FOOD ALLERGY ON THE RISE
WITH SCHOOL AGE CHILDREN
 Researchers believe up to
8 percent of children and
1 to 2 percent of adults
have food allergies and
the incidence of food
allergies in children is
increasing. A recent study
by Dr. Hugh Sampson,
Director of Pediatric
Research at Johns
Hopkins Children's Center
in Baltimore, Maryland,
found that the number of
patients with food
allergies doubled between
1981 and 1991, with
peanuts found as the
leading cause of these
increases.
11/13/2015
 Parents' fears that
something will happen to
their child while at school
is not just paranoia. In
1992, Sampson and his
colleagues reviewed the
cases of 13 patients ages
2 to 17 years who
experienced severe
allergic reactions; all of
the children knew of their
food allergy and avoided
eating the offending food.
The authors showed that
in all 13 cases, the
children ate something
they thought was "safe"
but wasn't. Six of the
cases resulted in
fatalities, four occurring at
school.
PARTNERSHIP
 To Ensure the
safety of Children
with hidden
disabilities there
must be open
communication
between Parents,
School Staff, and
Health
Professionals.
11/13/2015
Background
Food Allergy Task Force (FATF)
–
–
–
–
Broad Representation
Leadership Was Critical
Well Supported
Process & Product Focused
11/13/2015
Major Lessons Learned
Very complex issue
Need for RESPECT
Emergency… CALL 911
Standardization
Risk can be minimized, but not
eliminated
Monitor/Improve system Regularly
Food Service is only a small piece
11/13/2015
Scope of Life Threatening
Allergies
# of students
Noted Severe Food Allergy
883
Diet Prescription
126
Food allergy EAP's In place
94
Other Life EAP's in place
79
Other care plans in place
218
Total Care Plans
425
Based on 30,000 Students
11/13/2015
%
2.9%
0.4%
0.3%
0.3%
0.7%
1.4%
Procedures
Concerns:
• Formalized and Consistent
•
•
•
•
•
•
•
11/13/2015
NON ROUTINE Activities = RISK
Timely Identification
Team Approach
Not just Emergency Focus
504 Awareness
Calling 911
System very complex
Procedures
Recommendations:
• Improve Identification
• Standardized Forms
• Consistency and accuracy of emergency
response improved
• Clear procedures for non-routine activities, IE:
Trip planning Tool
• Define/Shared responsibility for both social &
educational activities
• Manage Food Products
11/13/2015
Procedures
Action Steps:
•
•
•
•
•
•
•
•
•
•
11/13/2015
Processing 1F15B “CCP”
Posting of EAP
Field Trip
Internal Transfers, follow RCW
Care Team, 504 accommodations
Science Kit Procedures
Nutrition Services Procedures
Flow Chart: (Like herding cats)
Nursing Services (IHP)
Responsibilities Brochure
Communication
Concerns:
• Address Awareness, Prevention, Emergency
Preparedness
• Degree of parental TRUST
• System to communicate key info to SUBS and
others
• Student transfers
• Need for ongoing communication with public
11/13/2015
Communication
Action Steps:
• Annual mailing to local physicians
• ALL critical Life Threatening Health
signs/form GREEN
• Work with area districts on standard forms and
procedures
• Process to notify substitutes
• Work with community and professional
organizations to raise awareness & orient to
district procedures
11/13/2015
Training
Concerns:
•
•
•
•
•
11/13/2015
Complex, costly, ongoing
Large staff, diverse needs
Staff turnover
Keeping content accurate & current
Doable/realistic
Training
Recommendations:
• Tiered Approach
– A: Basic 911 response
– B: Symptoms, Epi-Pen
– C: EAP, Accommodations, 504
• Integrated with other training
• Use train the trainer model
• Use technology (video, web based)
11/13/2015
Training
Action Steps:
•
•
•
•
•
•
Epi-Pen Training standardized
Secretaries training in August
Principal orientation August
Annual NS Training (subs)
Volunteer orientation
Human Resources: All hires 911 & emergency
health plans
• 504 training, integrate Allergies
• Crisis training, 911 & Allergies
11/13/2015
Monitor & Evaluate
Concerns:
•
•
•
•
•
•
11/13/2015
Access to usable data
Assigned to staff
Necessary resources
Need for TRUST and community participation
Essential part of a systems approach
Need for long term follow through
Monitor & Evaluate
Action Steps:
•
•
•
•
•
•
•
11/13/2015
Track EAP’s centrally and audit sites
NS Quality Reviews, EAP’s posted
Lunch Room Procedures reviewed
One Emergency Practice Drill Annually?
Track/Compare EAP’s to Diet Prescriptions
Track/Graph EAP numbers over years
Annual Review of Systems
Nutrition Service Systems
Forms (standard substitutions)
Production (Standard recipes, Product info)
Computer POS
Lunch Room Procedures
Sack Meals
Training
Monitoring
11/13/2015
New Law: RCW 28A.210 Sec 1
Child with a Life Threatening health
condition may NOT attend a public
school until medication or Treatment
order is in place
School must provide written notice prior
to exclusion explaining:
• New Law
• Child cannot attend until law is met
• Due process rights
11/13/2015
FOOD ALLERGEN CONSUMER
PROTECTION ACT
 Because the health and well-being of foodallergic consumers depends upon the accuracy
and clarity of food labels, Senator Edward
Kennedy (D-MA) and Representative Nita Lowey
(D-NY) authored The Food Allergen Consumer
Protection Act, which would make food
ingredient statements clear, accurate, and
reliable. This bill would require that
manufacturers label the main eight food
allergens in common language; close the food
additive loophole; and require better measures
to prevent cross-contamination among other
measures.
 Link to show your support of this National
legislation found at www.i-fast.org
11/13/2015
RESOURCES
Food Allergy & Anaphylaxis Network
(FAAN):
• http://www.foodallergy.org
Spokane Public Schools Web Page:
• http://www.spokaneschools.org
Inland Food Allergy Support Team:
• www.i-fast.org
Email:
11/13/2015
dougw@spokaneschools.org
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